Find a Doctor | NF Collective

Finding a Healthcare Professional

The neurofibromatoses, including NF1, NF2 and schwannomatosis, are progressive, lifelong conditions requiring long-term follow-up and management. Finding experienced healthcare professionals to oversee the care of someone with neurofibromatosis or schwannomatosis is the most important thing you can do for yourself or your loved one.

The organizations of the NF Collective have worked together to provide a list of NF providers. This site provides you with clinics and specialists who have been identified as experienced in diagnosing and caring for individuals with NF. Although we cannot guarantee the quality of care received, we hope that this resource is of great benefit to the NF Community.

If you need help choosing a specialist from this list, finding a specialist close to you, or wish to recommend a specialist to add to our listing, please contact us.

If you are an NF provider and would like to be included in this listing, please fill out the Request Form and a member of the NF Collective will be in touch.

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Provider	Clinic Director(s)	Ages	NF Types
University of Alabama at Birmingham UAB NF Clinic Birmingham, AL United States	Bruce Korf, MD, PhD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Arkansas Children’s Hospital NF Clinic Little Rock, AR United States	Elizabeth Sellars, MD and Kevin Bielamowicz, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Mayo Clinic Arizona NF Clinic Phoenix, AZ United States	Mayowa (Mayo) A. Osundiji, MBBS, PhD and Maciej Mrugala, MD, PhD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Phoenix Children's Hospital NF Program Phoenix, AZ United States	Neil Friedman, MBChB and Ross Mangum, MD	Pediatric	NF1 NF2-SWN Schwannomatosis
Children's Hospital of Los Angeles Comprehensive NF Clinic Los Angeles, CA United States	Tena Rosser, MD and Linda Randolph, MD, FAAP, FACMG	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of California, Los Angeles - UCLA UCLA Multidisciplinary NF Clinic Los Angeles, CA United States	Phioanh Leia Nghiemphu, MD and Marco Giovannini, MD, PhD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
House Clinic The House Ear Clinic Los Angeles, CA United States	William Slattery III, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Cedars-Sinai Medical Genetics - Neurology Department Los Angeles, CA United States	John M. Graham, MD, Medical Genetics; Jethro L. Hu, MD, Neurology; Robert M. Bernstein, MD, Orthopedics; Fataneh Majlessipour, MD, Peds/Hematology/Oncology; Pedro Sanchez, MD, Director of Medical Genetics, (310) 423-7779 for appointments and (310) 614-3071	Pediatric, Adult	NF1 NF2-SWN
Children's Hospital of Orange County CHOC NF Program Orange, CA United States	Neda Zadeh, MD, FAAP, FACMG	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Stanford/Lucile Packard Children's Hospital Stanford Children's Neurofibromatosis Clinic Palo Alto, CA United States	Cynthia Campen, MD and David Stevenson, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Lucile Packard Children's Hospital (Stanford) Stanford Pediatric NF Clinic Palo Alto, CA United States	Cynthia Campen, MD, MScE and David Stevenson, MD	Pediatric	NF1 NF2-SWN
Stanford Children's Health RASopathy/Neurofibromatosis Genetic Clinic Palo Alto, CA United States	Cynthia Campen, MD; David A. Stevenson, MD; Ellyn Farrely, Genetic Counselor	Pediatric	NF1 NF2-SWN Schwannomatosis
Stanford Health Center Stanford Neuroscience Health Center Palo Alto, CA United States	Jacinda Sampson, Neurogeneticist; Jon Park, MD, Spine neurosurgeon; John Ratliff, MD, Spine neurosurgeon; Lawrence Shuer, MD, Neurosurgeon; Juan C. Fernandez-Miranda, MD, Neurosurgeon; Steven D. Chang, MD, Neurosurgeon; Y. Joyc Liao, MD, PhD, Neuro-ophthal	Adult	NF1 NF2-SWN
UC Davis Health MIND Institute - NF/Ras Pathway Clinic Sacramento, CA United States	Katherine Rauen, MD, PhD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
UCSF Benioff Children's Hospital UCSF NF Program San Francisco, CA United States	Alyssa Reddy, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Children's Hospital Colorado Neurofibromatosis Clinic Aurora, CO United States	Aaina Kochhar, MD and John Binder, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Connecticut Children's Medical Center Neurogenetics Clinic Farmington, CT United States	Francis DiMario Jr., MD	Pediatric	NF1 NF2-SWN
Children's National Hospital The Gilbert Family Neurofibromatosis Institute Washington, DC United States	Benjamin Siegel MD and Sinan Turnacioglu MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Nemours/Alfred I. duPont Hospital for Children Nemours RASopathy & NF Clinic Wilmington, DE United States	Karen Gripp, MD, FAAP, FACMG	Pediatric	NF1 NF2-SWN Schwannomatosis
University of Florida/Shands UF NF and Neurocutaneous Center Gainesville, FL United States	Hans Shuhaiber, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
NeuroMedicine Hospital UF Neurofibromatosis and Neurocutaneous Center Gainesville, FL United States	Hans Shuhaiber, MD and Ashley Ghiaseddin, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Florida - Jacksonville NF Clinic Jacksonville, FL United States	Pamela L. Trapane, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Nicklaus Children’s Hospital NF Center Miami, FL United States	Mislen Bauer, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Miami Cancer Institute Miami Cancer Institute NF Center Miami, FL United States	Matthew Hall, MD	Adult	NF1 NF2-SWN Schwannomatosis
AdventHealth for Children Pediatric NF Clinic Orlando, FL United States	Chenue Abongwa, MD	Pediatric	NF1 NF2-SWN Schwannomatosis
Johns Hopkins All Children’s Hospital Neurocutaneous Disorders Clinic St. Petersburg, FL United States	Stacie Stapleton, MD and Melissa Crenshaw, MD	Pediatric	NF1 NF2-SWN Schwannomatosis
Moffitt Cancer Center NF Clinic Tampa, FL United States	Sepideh Mokhtari, MD and Nam Tran M.D., Ph.D.	Adult	NF1 NF2-SWN Schwannomatosis
Children's Healthcare of Atlanta/Emory University NF Clinic Atlanta, GA United States	David Wolf, MD, PhD and Prabhumallikarjun Patil, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Augusta University Health; Children's Hospital of Georgia Georgia Neurofibromatosis Clinic Augusta, GA	John W. Henson, MD and Suzanne Strickland, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Iowa Hospitals and Clinics NF Clinic Iowa City, IA United States	Alpa Sidhu, MD, PhD (Director)	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Ann and Robert H. Lurie Children’s Hospital of Chicago NF Program Chicago, IL United States	Co-Directors - Robert Listernick, MD; Carlos Prada, MD; Miriam Bornhorst, MD; Opthamologist Janice Lasky-Zeid, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Chicago - Chicago NF Program Chicago, IL United States	James Tonsgard, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Illinois in Chicago Neurofibromatosis Clinic Chicago, IL United States	Nikolas Mata-Machado, MD (children) and Stefania Maraka, MD (adults); Opthamologist - Lawrence Kaufman, MD, PhD	Pediatric, Adult	NF1 NF2-SWN
Northwestern Memorial Hospital Malnati Brain Tumor Institute Chicago, IL UNITED STATES	Karan Dixit, MD	Adult	NF1 NF2-SWN Schwannomatosis
University of Chicago - Orland Park NF Program Orland Park, IL United States	James Tonsgard, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Riley Hospital for Children IU Health Physicians Riley Neurofibromatosis Clinic Indianapolis, IN United States	Steven D Rhodes M.D., PhD; and Laurence Walsh, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Indiana University Neuroscience Center NF Program Indianapolis, IN United States	Steven Rhodes, MD, PhD and Laurence Walsh, MD	Adult	NF1 NF2-SWN Schwannomatosis
University of Kentucky Kentucky Neuroscience Institute NF Clinic Lexington, KY United States	Donita Lightner, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Louisville Weisskopf Center Louisville, KY United States	Dylan Brock, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Louisiana State University and Children's Hospital New Orleans CHNOLA NF Clinic Metairie, LA United States	Regina Zambrano, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Massachusetts General Hospital The Family Center for Neurofibromatosis Boston, MA United States	Scott Plotkin, MD, PhD and Justin Jordan, MD, MPH	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Boston Children's Hospital Multidisciplinary Neurofibromatosis Program Boston, MA United States	David Miller, MD, PhD and Nicole Ullrich, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Tufts Medical Center Genetics Boston, MA United States	Dallas Reed, MD and Gaitanis John, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Johns Hopkins University Johns Hopkins Comprehensive NF Center Baltimore, MD United States	Jaishri Blakeley, MD and Verena Staedtke, MD, PhD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
National Cancer Institute NF Clinic Bethesda, MD United States	Brigitte Widemann, MD	Pediatric	NF1 NF2-SWN Schwannomatosis
University of Michigan - Pediatric Genetics C.S. Mott Children's Hospital - Pediatric Genetics Ann Arbor, MI United States	Jeffrey Innis, MD, Catherine Keegan, MD	Pediatric	NF1
University of Michigan - Medical Genetics Medical Genetics Ann Arbor, MI United States	Thomas Gelehrter, MD, David Ginsburg, MD, and Jane Nicholson, MD	Adult	NF1 Schwannomatosis
Henry Ford Health System Multidisciplinary NF Clinic Detroit, MI United States	Tobias Walbert, MD, PhD, MPH	Adult	NF1 NF2-SWN Schwannomatosis
NF Clinic Grand Rapids Helen DeVos Children's Hospital Children's Outpatient Center Grand Rapids, MI United States	Daniel Fain, MD and Karen VanderLaan, MD (children); Bernard Eisenga, MD and Cynthia Hingtgen MD (adults)	Pediatric, Adult	NF1 Schwannomatosis
Corewell Health, Pediatric Neurology NF Clinic at Corewell Children's Royal Oak, MI United States	Heather Little, DO	Pediatric	NF1
M Health - University of Minnesota Medical Center and Masonic Children's Hospital Katie Hageboeck Children's Cancer Research Fund Clinic Minneapolis, MN United States	Christopher Moertel, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Children's Hospitals and Clinics of Minnesota Neurocutaneous Syndromes Clinic Minneapolis, MN United States	Amy Lebedoff, MD	Pediatric	NF1 NF2-SWN
Mayo Clinic NF Clinic Rochester, MN United States	Dusica Babovic-Vuksanovic, MD and Radhika Dhamija, MBBS	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Children's Mercy Hospital NF Clinic Kansas City, MO United States	Danielle Gordon, MD and Dihong Zhou, MD	Pediatric	NF1 NF2-SWN Schwannomatosis
St. Louis University Cardinal Glennon Children's Hospital NF Clinic St. Louis, MO United States	Ali Jamal, MD	Pediatric	NF1 NF2-SWN Schwannomatosis
Washington University/St. Louis Children's Hospital Washington University NF Center St. Louis, MO United States	David H. Gutmann, MD, PhD and Angela C. Hirbe, MD, PhD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of North Carolina Hospitals Neurofibromatosis/Schwannomatosis Clinic Chapel Hill, NC United States	Soma Sengupta, MD, PhD, MBA, FRCP, FAAN, FANA and Eric Creed, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Duke University Medical Center Duke Comprehensive NF Clinic Durham, NC United States	David Van Mater, MD, PhD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Wake Forest School of Medicine Multidisciplinary NF Clinic Winston-Salem, NC United States	Roy Strowd, III, MD and Amelia Kirby, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Rutgers New Jersey Medical School The Neurofibromatosis Center of New Jersey Newark, NJ United States	Caroline Hayes-Rosen, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
St. Joseph's Regional Medical Center NF Diagnostic and Treatment Program Paterson, NJ United States	Punita Gupta, MD, FACMG	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Nevada Las Vegas School of Medicine Department of Pediatric Genetics Las Vegas, NV United States	Susanna Sorrentino, MD	Pediatric	NF1 NF2-SWN
Albany Medical Center The Melodies Center Albany, NY United States	Lauren Weintraub, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Montefiore Medical Center/Children's Hospital at Montefiore Neurocutaneous Clinic Bronx, NY United States	Nagma Dalvi, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
John R. Oishei Children's Hospital Comprehensive NF Clinic Buffalo, NY USA	Matthew Barth, MD and Veetai Li, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
NYU Langone Medical Center Comprehensive NF Center at NYU Langone New York, NY United States	Kaleb Yohay, MD and Devorah Segal, MD, PhD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Columbia University Irving Medical Center NF Program New York, NY United States	Gurcharanjeet (Bonnie) Kaur, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Memorial Sloan Kettering Cancer Center Pediatric Neuro-Oncology Service New York, NY United States	Matthias A. Karajannis, MD, MS	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Rochester Medical Center/Golisano Children's Hospital NF Program Rochester, NY United States	Alexander Paciorkowski, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Rochester General Hospital Boev Clinic Rochester, NY USA	Jennifer Mulbury, MD (Adult and Pediatric Neurology) and Angel Boev, MD (Neurosurgery)	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Cincinnati Children's Hospital Medical Center NF Program Cincinnati, OH United States	Peter de Blank, MD, MSCE and Brittany Simpson, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Cleveland Clinic NF Program Cleveland, OH United States	Gary Hsich MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Rainbow Babies and Children's Hospital Multidisciplinary Neurocutaneous Syndromes Clinic Cleveland, OH United States	Duncan Stearns, MD and Breanne Roche, DNP, APRN, CPNP-PC, CPHON	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Nationwide Children's Hospital NF Clinic Columbus, OH United States	Murugu Manickam, MD MPH, FACMG	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
The Ohio State University NF Clinic Columbus, OH United States	Oliver Adunka, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Oklahoma Health Sciences Center University of Oklahoma NF Clinic Oklahoma City, OK United States	Danielle DeMarzo, MD, FACMG and Rene McNall Knapp, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Randall Children's Hospital at Legacy Emanuel Randall Children's Hospital NF Clinic Portland, OR United States	Drea Petersen, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
The Children's Hospital of Philadelphia University of Pennsylvania NF Clinic Philadelphia, PA United States	Michael Fisher, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Children's Hospital of Pittsburgh of UPMC Neurofibromatosis Clinic Pittsburgh, PA United States	Kathy Gardner, MD and Jenna Gaesser, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Lifespan Cancer Institute Pediatric Genetics and Metabolism Providence, RI United States	Chanika Phornphutkul, MD	Adult	NF1 NF2-SWN Schwannomatosis
Children's Hospital Greenville Health System BI-LO Charities Children's Cancer Center Greenville, SC United States	Nichole Bryant, MD	Pediatric	NF1 NF2-SWN
Sanford Health Pediatric Neurosurgery Sioux Falls, SD United States	Eric Trumble, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Le Bonheur Children's Hospital Genetics Clinic Memphis, TN United States	Eniko Pivnick, MD	Pediatric	NF1 NF2-SWN Schwannomatosis
Vanderbilt University Medical Center/Vanderbilt-Ingram Cancer Center VICC NF Clinic Nashville, TN United States	Paul Moots, MD and Alexander Mohler, MD, MS	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Dell Children's Hospital UT Health Austin Pediatric Neurosciences at Dell Children's Austin, TX United States	Manikum Moodley, MD (neurology) and Virginia Harrod, MD (neuro-oncology)	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
UT Southwestern/Children's Health Comprehensive NF Program Dallas, TX United States	Laura Klesse, MD, PhD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Cook Children's Health Care System NF Clinic Fort Worth, TX USA	Jeffery Murray, MD	Pediatric	NF1 NF2-SWN
Texas Children's Hospital NF Clinic Clinic Houston, TX United States	William Craigen, MD, PhD	Pediatric	NF1
University of Texas MD Anderson Cancer Center Pediatric NF Clinic Houston, TX United States	John Slopis, MD, MPH and Gregory Friedman, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Baylor College of Medicine Adult Genetics Clinic Houston, TX United States	Shweta Dhar, MD	Adult	NF1 NF2-SWN Schwannomatosis
University of Utah NF Clinic Salt Lake City, UT United States	Dave Viskochil, MD, PhD and and Vanina Taliercio, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Virginia Charlottesville Neurofibromatosis Clinic Charlottesville, VA	Kathryn Xixis, MD (Management and Surveillance of Medically Complex NF patients) and Christina Peroutka, MD (Initial NF evaluation and routine NF surveillance)	Pediatric	NF1 NF2-SWN
Children's Hospital of the Kings Daughters Comprehensive Neurofibromatosis Clinic Norfolk, VA United States	Sarah Chagnon, MD	Pediatric	NF1 NF2-SWN
Children's Hospital of Richmond at VCU Hematology and Oncology Richmond, VA United States	Zhihong Joanne Wang, MD	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Vermont Medical Center Neurology Burlington, VT United States	Alissa Thomas, MD (Adult) and Katherine J. Anderson, MD (Pediatrics)	Pediatric, Adult	NF1
Seattle Children's Hospital Seattle Children's Neurology NF Program Seattle, WA United States	Aimee Sato, MD, Neurology and Lauren Levesque, NP	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
University of Washington Alvord Brain Tumor Center Seattle, WA United States	Lynne P. Taylor, MD	Adult	NF1 NF2-SWN Schwannomatosis
American Family Children's Hospital/University of Wisconsin Hospitals and Clinics Neurocutaneous Disorders Clinic Madison, WI United States	Nicholas Pytel, DO	Pediatric, Adult	NF1 NF2-SWN Schwannomatosis
Children's Wisconsin NF/RASopathy Center Milwaukee, WI United States	Donald Basel, MD, MBBCh, BSc and Leah Lalor, MD	Pediatric	NF1 NF2-SWN Schwannomatosis
Froedtert and Medical College of Wisconsin Neuro-Oncology Clinic Milwaukee, WI United States	Jennifer Connelly, MD	Adult	NF1 NF2-SWN Schwannomatosis
Ascension Columbia St. Mary's Van Dyke Cancer Center Milwaukee, WI United States	Hendrikus Krouwer, MD	Adult	NF1 NF2-SWN Schwannomatosis
WVU Medicine Children's Hospital Department of Child Neurology Morgantown, WV United States	Elizabeth McQuade, MD	Pediatric	NF1 NF2-SWN Schwannomatosis

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